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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 89
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Morning friends,
for those of you that have had steroid jabs can you tell me how long it has taken before the pain eases? My mum has been in such awful pain for over two weeks and has been referred to the rheumatology team who have given her a steroid jab in her knee, this was on Thursday morning but she is still in a lot of pain, should things have settled by now? She also had fluid taken off her knee to check for infection which was clear. It is suspected that she has RA and has now had all the blood tests done. Also she is covered in lots of tiny itchy spots and cold sore type things on her lips which they thought was shingles but now they are not so sure, so she is going to have skin tests on Tuesday when sees the rheummy consultant again, i've never seen my mum look so poorly before!
Many thanks
emilyXXX.
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Rank: Advanced Member  Groups: Registered
Joined: 12/8/2009 Posts: 230 Location: Leicester
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Whenever you have fluid drained and a steroid injection, the key thing is rest for the first few days. It can take a few days to make any difference, sometimes up to a week depending on how much fluid is drained. I'm so sorry your mum is poorly and I would suggest maybe speaking to the doctor or nurse at the clinic next week if she is still bad. Unfortunately it is a waiting game when you are trying to get diagnosed and a very frustrating one. It is going to take time for any medication to kick in.... Hoping your mum feels better soon...... Helly x Celebrating 10yrs of National Rheumatoid Arthritis Society Doing a Tandem Skydive - May 2011 - All Sponsorship Welcome - www.justgiving.com/helencopeland Read my blog - Helly Copeland
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Rank: Advanced Member
Groups: Registered
Joined: 12/5/2009
Posts: 103
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Hi Emily,I am in a similer postition.I had a steroid injection in the shoulder last Wed. and I'm yet to feel any imrovement.  The day I had it done was fantastic,all the pain went but that was because an anesthetic was combined with the steroid jab.My Gp did say that the injection doesn't work for everyone and that a second one may be needed.As this was my first steroid injection I'm afraid I can't offer any advice. I do hope your mother will soon see some improvement. Brenda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Emily,
Sorry to hear how poorly your Mum is and that she's being tested for RA.
It can take a few days before a joint settles down after an injection so don't give up hope yet.
Hope she gets some relief from the pain soon.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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emily.
mum might have an infection from the jab itself.
Plus, there might be ongoing bone- cartilage probs in there (needs xray)
the other thing is ask for the steroid to be done under ultrasound. the ultrasound can see the problems and also can inject exactly the right place- the wrong place would mean a lot of pain and no benefit.
Much love to you (and mum)
Jenni xhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Oh your poor Mam!
The jab still may help, she needs to rest ALOT especially after having the knee aspirated. To be honest I find it depends which rheumy does it, in the past I have had SO much pain afterwards as they weren't careful enough with where they're putting the needle and being too rough. Also one should really have an anasthetic into the knee first, it helps SO much. Usually a rheumy can decipher what type of arthritis one has just from the colour and the look of the fluid- Rheumatoif fluid is full of gunk and yellow.
Hope your Mam gets a dx very soon, please send love and prayers.
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Sorry to hear your mum is feeling so poorly. I have had steroid jabs that worked really well, and others that didn't work at all. Don't despair, it may still work, but be taking its time. It's important to rest after the jab, although that's hard to do.
It's good that she's seeing the rheumy on Tuesday, she should be able to get some answers then.
Lyn
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 89
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Thank you so much for all your replies,
well she still hasn't managed to get much sleep and her knee is still very much in pain, this is now the third day since the jab so will call consultant in the morning. My mum has rested since she had the jab as she really can not put any weight on it or move it as so painful. I don't think our rheumatologist would be very accomodating or pleased if we asked for the jab to be done by ultrasound or to have a anasthetic but if feeling brave/confident enough we will ask!
Thanks again
love emilyXXX.
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 89
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Just a quick update,
my mum went yesterday and saw RA head of department consultant who was lovely and very helpful. She has now got tablets to take called TARGINACT (oxycodone and naloxone) to help with the pain. My poor mum is in shock i think as she is now having to use a wheelchair to be moved around and a walking frame to shuffle, it's strange because it's normally me doing this when the RA's very bad and now im seeing it from a different perspective (very sad to see how debilitating it is on someone else). Anyway mum has to go back next week and hopefully she will have some steroids to help the inflammation. Later this week she is also going to see skin specialist as the ra consultant thinks the spots/sores all over her body/face could be ulcers linked to arthritis!
Hopefully things will improve quickly for my poor mum.
emilyXXX.
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Emily,
Your poor Mum, she is really going through it!
I hope the painkillers help to give her some relief.
Love, Doreen xx
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Rank: Advanced Member Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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It must be horrible to see your mum going throught what you've had to suffer. I hope the new tablets bring her some relief.
Lyn
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Sorry to hear this Emily. I'm glad they are seeing your mum to follow things up though. Take care.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Sorry, Emily, but I've only just picked up on this. I'm so very sorry your poor Mum is having to go through this. The ulcers/spots sound horrendous. Praying that she gets some relief from the grinding pain.
How are you, my friend?
Lots of love
Jeanxxxxx
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Thank goodness that Mum has got help Emily. It is very sad and emotional to see your parent deteriorate in such a way. I have personal experience of this with my Mum. It is more difficult to look out and see someone else in pain and suffering, than to look inside at how you are yourself.
Hope that she soon is more comfortable.
Eleanor x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 62
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Hi Emily
I have also just picked up on this thread and hope you Mum will soon be feeling better. At least she has seen someone nice and who took the time to listen to her.
Take care of yourself as well - love Brenda
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Rank: Advanced Member  Groups: Registered
Joined: 11/28/2009 Posts: 238 Location: North London
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oh your poor mum, what a trial of a time. I'm adding my good wishes to the mix, and all strength to you too, best, franky
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Lots of love and special prayers to your Mam and yourself...
Will e/mail!
Love,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Emily,
Sorry to hear that your Mum's unwell. I think we all react differently to steroids, sometimes they work quickly and other times not at all.
Hope she feels better soon and that the RA calms down,
Love,
Barbara
XXXXXX
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 89
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Hello my lovely friends and thank you for your replies, although my mum does not know any of you she smiles and is genuinely touched when i tell her what you've all said, i think it has given her comfort to know that others care and understand the pain.
The skin consultants were very good, took swabs and gave lots of much needed reassurance. The results will be back next week as they are growing the blood cultures and swabs. There are a couple of things that they think it might be:
the virus might have come from the shingles/chicken pox/cold sore virus and could have caused 'reactive arthritis' causing the severe pain in knee/leg or it could be rheumatoid arthtritis whereby it is attacking the skin aswell as joints or it could be a skin virus totally unconnected to the start of rheumatoid arthritis!
Atleast we are getting some answers as to whats going on and hopefully will get firm diagnosis of everything next week.
Many thanks again.
Hope you all have a nice weekend.
emilyXXX.
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